U.S. Department of Health and Human Services

Public Health Service Interagency Coordinating Committee on Human Growth Hormone and Creutzfeld-Jacob Disease

The Public Health Service Interagency Coordinating Committee on Human Growth Hormone (hGH) and Creutzfeldt-Jakob Disease (CJD) was established in 1985 by the Assistant Secretary for Health, HHS to review information relevant to patients who received pituitary-derived hGH that was distributed through the NIH-funded National Hormone and Pituitary Program (NHPP). The Committee analyzes this information to determine the extent of the problem of transmission of CJD (a rare, incurable brain disease) through contaminated pituitary hGH, and to inform physicians and patients who received pituitary hGH about the health risks associated with pituitary hGH.  Current information for patients is summarized on the National Endocrine and Metabolic Diseases Information Service (NEMDIS) website​. Although NHPP’s distribution of hGH ceased when its potential to transmit CJD was discovered in 1985—and today, recombinant growth hormone that is not susceptible to CJD contamination is exclusively used for treatment—the Committee continues to maintain oversight of this issue because CJD may take years or decades to develop. The Committee includes representatives from NIH, FDA, and CDC, and is chaired by the NIDDK Director.  

Meeting Minutes

2013
hGH-CJD_summary_2013_final.docxSummary of the October 22, 2013 Committee meeting (Word, 22 KB)

2012

2011

2010

2009

2008

2007