U.S. Department of Health and Human Services

Health Resources and Services Administration (HRSA) Activities

Quality improvement/Evidence of Therapy

This section describes current quality improvement and evidence of therapy programs of the Federal government related to chronic kidney disease.

Health Resources and Services Administration (HRSA)

Funded by HRSA, the Organ Procurement and Transplantation Network (OPTN) is the unified transplant network established by Congress under the National Organ Transplant Act (NOTA) of 1984. The OPTN is a unique public-private partnership that links Organ Procurement Organizations (OPOs), transplant programs, and histocompatibility laboratories together into a national transplant system. The primary goals of the OPTN are to maximize the benefits to patients through patient-centric organ allocation policies; increase the efficiency, effectiveness, and safety of the national organ allocation and distribution system; and increase the supply of donated organs (including kidneys) available for transplantation.

The OPTN monitors the outcomes of OPOs and transplant programs by using risk-adjusted data models and assists members in improving performance outcomes through a peer-mentoring process.

As of May 20, 2016, there were 120,783 candidates on the OPTN organ waiting list, of which 99,977 (82.8%) were waiting for a kidney transplant.

NOTA established the Scientific Registry of Transplant Recipients (SRTR), which provides analytic support to the OPTN in the development and evaluation of OPTN organ (including kidney) allocation and other policies. The SRTR conducts independent research to add to the body of knowledge about organ donation and transplantation. Transplant program and OPO performance reports and data are available on the SRTR website. The SRTR also makes solid organ transplantation data available to bona fide transplant researchers from the time of listing of the potential transplant recipient through graft failure or patient death.

Contact Information
Melissa Greenwald, MD
Acting Director, Division of Transplantation
Phone: 301-945-0942
Email: mgreenwald@hrsa.gov
Web: www.organdonor.gov

Last Updated: May 26, 2016

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Public Outreach and Education

This section describes current outreach and education programs of the Federal government related to chronic kidney disease.

Health Resources and Services Administration (HRSA)

HRSA has undertaken various initiatives to promote awareness of the need for donated organs, better understand and counter issues that preclude positive donation decisions by the public, and encourage the public to enroll in their state donor registries.

Media-based Education and Outreach

HRSA researches and targets audiences or topics where there is opportunity for growth in donation and utilizes the following direct engagement strategies to increase awareness:

  • Public service announcement campaigns for radio, TV stations, and publications nationwide
  • Radio Ad Spotlights in designated markets with the highest numbers of Blacks or African Americans, Asians, Hispanics or Latinos, and people 50 years and older during high traffic drive-time hours
  • Print ads in widely circulated programs such as program guides of major sporting events
  • Feature stories distributed to newspapers, journals, and other publications
  • Downloadable print materials on a variety of topics for multiple audiences
  • HRSA’s organ donation websites, www.organdonor.gov  and donaciondeorganos.gov
  • Educational web videos for reposting, download, and social media
  • Social media outreach including Facebook

Other Education and Outreach Initiatives

  • Workplace Partnership for Life: Targeted national effort to enlist and encourage organizations to coordinate donor awareness and registry enrollment activities with their staff, customers, visitors, and community members.
  • Other Events to Promote Donation: Outreach activities related to the six nationally observed commemorative events that raise awareness about the need for organ donation, including Donate Life Month each April.

Research on Interventions to Increase Donation

HRSA also funds grant programs focused on increasing deceased donation through promotion of donor registry enrollment and family consent, and parental commitment for minors to become donors upon the death of a child. HRSA grants also support projects to increase knowledge about the risk and benefits of living donation and to identify and replicate effective outreach strategies for increasing donation projects.

Contact Information
Melissa Greenwald, MD
Acting Director, Division of Transplantation
Phone: 301-945-0942
Email: mgreenwald@hrsa.gov
Web: www.organdonor.gov

Last Updated: May 26, 2016

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Delivery & Payment of CKD Care

This section describes activities related to the delivery and payment of chronic kidney disease care supported or sponsored by the Federal government.

Health Resources and Services Administration (HRSA)

HRSA supports the Reimbursement of Travel and Subsistence Expenses toward the Living Organ Donation Program, which provides financial assistance for people who wish to be living organ donors who might not otherwise be able to donate. HRSA administers the program through a cooperative agreement with the Regents of the University of Michigan, which partnered with American Society of Transplant Surgeons in establishing the National Living Donor Assistance Center (NLDAC). The NLDAC provides reimbursement for donation-related travel, lodging, and miscellaneous expenses related to donors’ evaluation, surgery, and follow-up visit(s) to those who wish to be living organ donors, with priority given to individuals not otherwise able to afford those costs.

Contact Information
Melissa Greenwald, MD
Acting Director, Division of Transplantation
Phone: 301-945-0942
Email: mgreenwald@hrsa.gov
Web: www.organdonor.gov

Last Updated:May 26, 2016

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Surveillance

This section describes surveillance activities and programs of the Federal government related to chronic kidney disease.

Health Resources and Services Administration (HRSA)

The Organ Procurement and Transplantation Network (OPTN) collects and manages scientific data about organ (kidney) donation and transplantation. OPTN maintains a secure Web-based computer system for operating the nation's organ transplant waiting list and recording recipient/donor organ characteristics.

The Ad Hoc Disease Transmission Advisory Committee (DTAC) is an OPTN committee composed of organ procurement organization staff, transplant center coordinators, transplant surgeons, and infectious disease, malignancy, and pathology specialists. DTAC considers issues related to the transmission of disease through organ transplantation. DTAC works together with the Centers for Disease Control and Prevention to review information about individual potential disease transmission cases reported to the OPTN in an effort to identify transmissions where possible. It reviews aggregate data on all reported cases to assess the risk of donor disease transmission in organ transplantation in the U.S. with the goal of providing:

  • Education and guidance to the transplant community toward preventing future disease transmission
  • Input in developing policy to improve the safety of organ donation through the reduction of donor derived transmission events.

DTAC may identify disease-transmission related patient safety issues to be addressed, as appropriate, by the OPTN.

Contact Information
Melissa Greenwald, MD
Acting Director, Division of Transplantation
Phone: 301-945-0942
Email: mgreenwald@hrsa.gov
Web: www.organdonor.gov

Last Updated: May 26, 2016

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This information was reviewed by KICC agency representatives. It may not reflect new or future agency activities. For more information, please contact the listed representatives.