Public Education & Outreach

This section describes current outreach and education programs of the Federal government related to chronic kidney disease.

Department of Defense (DoD)

The DoD has been actively collaborating with NKDEP in the review of patient education materials pertaining to chronic kidney disease (CKD). These materials will be widely available to DoD providers for patient dissemination within the clinic and will be available directly to patients via DoD's CPG shopping cart.

Contact Information
James Ellzy, CDR, US Navy
Director of Clinical Quality
Phone: 703-681-0064

Last Updated: March 1, 2012

Health Resources and Services Administration (HRSA)

HRSA has undertaken various initiatives to promote awareness of the need for donated organs, better understand and counter issues that preclude positive donation decisions by the public, and encourage the public to enroll in their state donor registries.

Media-based Education and Outreach

HRSA researches and targets audiences or topics where there is opportunity for growth in donation and utilizes the following direct engagement strategies to increase awareness:

  • Public service announcement campaigns for radio, TV stations, and publications nationwide
  • Radio Ad Spotlights in designated markets with the highest numbers of Blacks or African Americans, Asians, Hispanics or Latinos, and people 50 years and older during high traffic drive-time hours
  • Print ads in widely circulated programs such as program guides of major sporting events
  • Feature stories distributed to newspapers, journals, and other publications
  • Downloadable print materials on a variety of topics for multiple audiences
  • HRSA’s organ donation website
  • Educational web videos for reposting, download, and social media
  • Social media outreach including Facebook

Other Education and Outreach Initiatives

  • Workplace Partnership for Life: Targeted national effort to enlist and encourage organizations to coordinate donor awareness and registry enrollment activities with their staff, customers, visitors, and community members.
  • Other Events to Promote Donation: Outreach activities related to the six nationally observed commemorative events that raise awareness about the need for organ donation, including Donate Life Month each April.

Research on Interventions to Increase Donation

HRSA also funds grant programs focused on increasing deceased donation through promotion of donor registry enrollment and family consent, and parental commitment for minors to become donors upon the death of a child. HRSA grants also support projects to increase knowledge about the risk and benefits of living donation and to identify and replicate effective outreach strategies for increasing donation projects.

Contact Information
Melissa Greenwald, MD
Acting Director, Division of Transplantation
Phone: 301-945-0942

Last Updated: May 26, 2016

Indian Health Service (IHS)

The IHS Division of Diabetes provides information for patients, families, and communities about dialysis and transplantation, as well as links to other organizations and agencies. IHS's Division of Diabetes Treatment and Prevention provides educational resources about kidney disease in their online catalog, such as Taking Care of Your Kidneys, a 15-page booklet that informs patients on kidney damage due to bladder and kidney infections.

Access CKD patient education resources through the IHS CKD and Diabetes Hubor the IHS Online Catalog.

Contact Information
About IHS:
Division of Diabetes Treatment and Prevention
Phone: 505-248-4182

About CKD:
Andrew S. Narva, MD, FACP, FASN
Chief Clinical Consultant for Nephrology
Phone: 301-594-8864

Last Updated: June 1, 2014

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

The National Institute of Diabetes and Digestive and Kidney Disease (NIDDK) develops and distributes information and responds to inquiries on kidney diseases, and related issues such as diabetes and obesity, through its website, social media, health fairs, and exhibits.

The NIDDK’s National Kidney Disease Education Program (NKDEP) promotes evidence-based interventions to improve understanding, detection, and management of kidney disease, including identification of patients at greatest risk for progression to kidney failure.

Highlights of some of the NKDEP resources include:

  • Initiatives to encourage African American faith communities and families to “make the kidney connection” and learn how to protect their kidneys.

Veterans Affairs (VA)

The VA has been actively collaborating with NKDEP and the Centers for Disease Control in the review of patient education materials pertaining to chronic kidney disease (CKD). These materials are available to VA providers for patient dissemination within the clinic and are directly available to patients via VA's eKidney Clinic website, as well as through the Department of Defense's clinical practice guideline shopping cart .

VA partnered with the Medical Education Institute in 2012 to develop an interactive web-based learning system, known as the VA eKidney Clinic, to help guide Veterans through the process of managing CKD and making treatment related decisions. The eKidney Clinic is available to the public in addition to VA patients and providers via the VA National Kidney Program website.

In 2013, VA launched the VA National Kidney Program website. This website provides Veterans with convenient and quick access to a range of kidney related resources including a directory of VA outpatient dialysis facility locations, a list of VA benefits and services specific to the needs of kidney and end stage renal disease patients, and further educational resources.

Contact Information
VHA National Kidney Program

Last Updated: June 1, 2014

This information was reviewed by KICC agency representatives. It may not reflect new or future agency activities. For more information, please contact the listed representatives.