NKDEP Health Information Technology Working Group

The Health Information Technology Working Group (HITWG) works to enable and support the widespread interoperability of data related to kidney health among healthcare software applications to optimize CKD detection and management. The group aims to provide easy and uniform access to kidney health information that will enable researchers to better understand the national burden of CKD, health care professionals to better care for CKD patients, and people living with kidney disease to better manage their health. The working group is focused on incorporating CKD data into electronic health records in a consistent and searchable manner, and improving management of CKD populations using HIT. The HITWG is currently supporting three sub groups: the Electronic CKD Care Plan Working Group, the CKD Computable Phenotype Working Group, and the CKD Business Case Working Group.

To support HIT-based CKD population management efforts, the working group has helped to establish the Managing Chronic Disease Populations through Health Information Technology wiki, where clinicians and researchers can share strategies, ideas, and resources.

The HITWG and its subgroups are comprised of kidney health and informatics experts from government, academic, and clinical settings, as well as patient advocates.

Health Information Technology Working Group Members

  • Paul Drawz, M.D.
    HIT Working Group Chair
    Assistant Professor
    Division of Renal Diseases and Hypertension
    University of Minnesota
  • Andrew S. Narva, M.D., F.A.C.P., F.A.S.N.
    Director
    National Kidney Disease Education Program
    National Institute of Diabetes and Digestive and Kidney Diseases
    National Institutes of Health
  • Patrick Archdeacon, M.D.
    Medical Officer and Transplant Nephrologist
    Division of Special Pathogen and Transplant Products
    Food and Drug Administration
  • Blake Cameron, M.D., M.B.I.
    Medical Instructor, Nephrology
    Duke University Medical Center
    Lead Nephrologist
    Duke Connected Care
  • Theresa Cullen, M.D., M.S.
    Associate director
    Global Health Informatics Program
    Regenstrief Institute
  • Brenda Hemmelgarn, Ph.D., M.D.
    Associate Professor
    Departments of Medicine and Community Health Sciences
    University of Calgary
  • Ken Kawamoto, M.D., Ph.D.
    Associate Chief Medical Information Officer
    Director of Knowledge Management and Mobilization
    Assistant Professor
    Department of Biomedical Informatics
    University of Utah School of Medicine
  • Richard Knight, M.B.A.
    Patient Consultant
    Vice President and Chair of Public Policy
    American Association of Kidney Patients
    Adjunct Instructor
    Bowie State University/College of Business
  • Jenna M. Norton, M.P.H.
    Kidney and Urologic Science Translation Program Manager
    National Kidney Disease Education Program
    National Institute of Diabetes and Digestive and Kidney Diseases National Institutes of Health
  • Uptal D. Patel, M.D.
    Former HIT Working Group Chair
    National Kidney Disease Education Program
    Associate Professor of Medicine and Pediatrics
    Duke University School of Medicine
  • Neil R. Powe, M.D., M.P.H., M.B.A
    Constance B. Wofsy Distinguished Professor
    Vice-Chair of Medicine
    University of California San Francisco
    Chief of Medical Services
    San Francisco General Hospital
  • Nilka Rios Burrows, M.P.H., M.T. (A.S.C.P.)
    Epidemiologist
    Division of Diabetes Translation
    National Center for Chronic Disease Prevention and Health Promotion
    Centers for Disease Control and Prevention
  • Thomas Sequist, M.D., M.P.H.
    Chief Quality and Safety Officer
    Partners HealthCare
    Associate Professor of Medicine and Health Care Policy
    Harvard Medical School
    Director of Research
    Harvard Vanguard Medical Associates

The Electronic CKD Care Plan Working Group

The CKD Care Plan Working Group aims to identify the CKD-related elements that should be included in a comprehensive electronic care plan template. The template elements will enable patients and clinicians to access, create, record, change, and receive key patient information and goals across multiple conditions. The resulting CKD template elements will be consistent with certification criteria detailed by the Office of the National Coordinator for Health Information Technology (ONC). Learn more about the working group process and review the draft set of CKD care plan data elements.

  • Theresa Cullen, M.D., MS
    CKD Care Plan Working Group Co-Chair
    Associate Director
    Global Health Informatics Program
    Regenstrief Institute
  • Andrew S. Narva, M.D., FACP, FASN
    CKD Care Plan Working Group Co-Chair Director
    National Kidney Disease Education Program
    National Institute of Diabetes and Digestive and Kidney Diseases
    National Institutes of Health
  • Susan T. Crowley, M.D., FASN
    VHA National Program Director for Kidney Disease and Dialysis Chief, Renal Section
    VA Connecticut Healthcare Systems
  • Clarissa J. Diamantidis, M.D.
    Assistant Professor of Medicine
    Duke University School of Medicine
  • Jennifer Ennis, M.D.
    Nephrologist and Medical Director
    Litholink Corp, a LabCorp Company
  • Patti Ephraim, MPH
    Research Associate
    Division of Cardiovascular Disease and Clinical Epidemiology
    Johns Hopkins Bloomberg School of Public Health
  • Chester Fox, M.D.
    Professor of Clinical Family Medicine
    University at Buffalo
  • Evelyn Gallego, MBA, MPH, CPHIMS
    Office of the National Coordinator for HIT
  • Raquel Charles Greer, M.D., MHS, FACP
    Co-Director, Clinical Epidemiology
    Johns Hopkins University
  • Elizabeth Palena Hall, MIS, MBA, RN, LTPAC
    Long-Term and Post-Acute Care Community of Practice Coordinator
    Office of the National Coordinator for HIT
  • Kimberly Harding
    President
    Monarch Innovation Partners
  • Manisha Jhamb, M.D., MPH
    Assistant Professor of Medicine
    University of Pittsburgh School of Medicine
  • Claudine Jurkovitz, M.D., MPH
    Director of Operations
    Center for Outcomes Research
    Christiana Care Health System
  • Kam Kalantar-Zadeh, M.D., MPH, Ph.D.
    Chief, Division of Nephrology
    University of California, Irvine
  • Kathleen Kimmel, RN, MHA
    Nurse Consultant
    Office of the National Coordinator for HIT
  • Richard Knight, MBA
    Patient Consultant
    Vice President and Chair of Public Policy
    American Association of Kidney Patients
    Adjunct Instructor
    Bowie State University/College of Business
  • Edgar V Lerma, M.D.
    Clinical Professor of Medicine
    Section of Nephrology
    University of Illinois at Chicago College of Medicine
    Associates in Nephrology, SC
  • Joseph V. Nally, Jr., M.D.
    Director, Center for Chronic Kidney Disease
    Cleveland Clinic
    Clinical Professor of Medicine
    Cleveland Clinic Lerner College of Medicine
  • Jenna M. Norton, MPH
    Kidney and Urologic Science Translation Program Manager
    National Kidney Disease Education Program
    National Institute of Diabetes and Digestive and Kidney Diseases
    National Institutes of Health
  • Sanjeev Rastogi, M.D.
    Partner
    Nephrology Specialists PC
  • Nilka Rios Burrows, MPH, MT (ASCP)
    Epidemiologist
    Division of Diabetes Translation
    National Center for Chronic Disease Prevention and Health Promotion
    Centers for Disease Control and Prevention
  • Tonya Saffer
    Senior Health Policy Director
    National Kidney Foundation
  • Lipika Samal, M.D., MPH
    Associate Physician
    Brigham's Women's Hospital
    Assistant Professor of Medicine
    Harvard Medical School
  • Julia Skapik. M.D., MPH
    Medical Officer
    Office of Standards & Technology
    Office of the National Coordinator for HIT
  • Sandeep Soman, M.D.
    Associate Division Head
    Division of Nephrology and Hypertension
    Henry Ford Hospital
  • Joseph Vassalotti, M.D.
    Chief Medical Officer
    National Kidney Foundation
  • Miguel Vasquez, M.D.
    Professor of Internal Medicine
    UT Southwestern Medical Center
  • Susan Zieman, M.D., Ph.D.
    Medical Officer
    Division of Geriatrics and Clinical Gerontology
    National Institutes on Aging

The CKD Computable Phenotype Working Group

The CKD Computable Phenotypes Working Group aims to develop and validate electronic CKD phenotypes informed by laboratory values, as well as implementation resources that facilitate CKD quality improvement, research, and surveillance. Specifically, the working group plans to explore development of tools to integrate CKD phenotypes into point-of-care clinical decision support and to make it as easy as possible for patients, clinicians, and health system administrators to identify eGFR and proteinuria-related laboratory values from their EHR systems.

  • Paul Drawz, M.D.
    CKD Computable Phenotypes Working Group Co-Chair
    Assistant Professor
    Division of Renal Diseases and Hypertension
    University of Minnesota
  • Ken Kawamoto, M.D., Ph.D.
    CKD Computable Phenotypes Working Group Co-Chair
    Associate Chief Medical Information Officer
    Director of Knowledge Management and Mobilization
    Assistant Professor
    Department of Biomedical Informatics
    University of Utah School of Medicine
  • Khaled Abdel-Kader, M.D.
    Assistant Professor
    Division of Nephrology and Hypertension
    Department of Medicine
    Vanderbilt University Medical Center
  • Michelle Denburg, M.D., MSCE
    Attending Physician
    Division of Nephrology
    Children’s Hospital of Philadelphia
  • Chester Fox, M.D.
    Professor of Clinical Family Medicine
    University at Buffalo
  • Ed Hammond, Ph.D.
    Director
    Duke Center for Health Informatics
  • Jamie S Hirsch, M.D.
    Nephrologist and Informaticist
    Northwell Health
  • Claudine Jurkovitz, M.D., MPH
    Director of Operations
    Center for Outcomes Research
    Christiana Care Health System
  • Krzysztof Kiryluk M.D., MS
    Assistant Professor of Medicine
    Department of Medicine, Division of Nephrology
    Columbia University
  • Clem J McDonald, M.D.
    Director
    Lister Hill National Center for Biomedical Communications
    U.S. National Library of Medicine
  • Sumit Mohan, M.D., MPH
    Assistant Professor of Medicine
    Department of Medicine
    Columbia University
  • Andrew S. Narva, M.D., FACP, FASN
    Director
    National Kidney Disease Education Program
    National Institute of Diabetes and Digestive and Kidney Diseases
    National Institutes of Health
  • Sankar Navaneethan, M.D.
    Adjunct Associate Professor
    Department of Medicine, Division of Nephrology
    Baylor College of Medicine
  • Jenna M. Norton, MPH
    Kidney and Urologic Science Translation Program Manager
    National Kidney Disease Education Program
    National Institute of Diabetes and Digestive and Kidney Diseases
    National Institutes of Health
  • Meyeon Park, M.D.
    Assistant Professor
    Department of Medicine
    University of California, San Francisco
  • Nilka Rios Burrows, MPH, MT (ASCP)
    Epidemiologist
    Division of Diabetes Translation
    National Center for Chronic Disease Prevention and Health Promotion
    Centers for Disease Control and Prevention
  • Lipika Samal, M.D., MPH
    Associate Physician
    Brigham's Women's Hospital
    Assistant Professor of Medicine
    Harvard Medical School

The CKD Business Case Working Group

The CKD Business Case Working Group aims to create a framework business case that will allow individual settings to justify investment in health information technology infrastructure to support CKD population management. The working group—with support from researchers at the Duke Institute for Health Innovation (DIHI)—has developed a draft financial model to help health advocates and decision makers realize the positive financial implications of investing in CKD population health programs. On the DIHI website, the draft model and a demonstration video are available. Feedback on the draft model is welcomed and can be provided via DIHI. Learn more about the working group process and review the background materials for the financial model (PDF, 560 KB) .

  • Blake Cameron, M.D., M.B.I.
    CKD Business Case Working Group Chair
    Medical Instructor, Nephrology
    Duke University Medical Center
    Lead Nephrologist
    Duke Connected Care
  • Suresh Balu, M.B.A.
    Director Strategy & Innovation
    Duke Institute of Health Innovation
  • Paul Drawz, M.D.
    HIT Working Group Chair
    Assistant Professor
    Division of Renal Diseases and Hypertension
    University of Minnesota
  • Kevin Fowler
    Patient Representative
    The Voice of The Patient, Inc.
  • Daniel Gossett, Ph.D.
    Program Director
    Division of Kidney, Urologic, and Hematologic Diseases
    National Institute of Diabetes and Digestive and Kidney Diseases
    National Institutes of Health
  • Kimberly Harding
    President
    Monarch Innovation Partners
  • David Hutton, Ph.D.
    Associate Professor
    Health Management and Policy
    University of Michigan School of Public Health
  • Andrew S. Narva, M.D., F.A.C.P., F.A.S.N.
    National Kidney Disease Education Program
    National Institute of Diabetes and Digestive and Kidney Diseases
    National Institutes of Health
  • Jenna M. Norton, M.P.H.
    Kidney and Urologic Science Translation Program Manager
    National Kidney Disease Education Program
    National Institute of Diabetes and Digestive and Kidney Diseases
    National Institutes of Health
  • Meyeon Park, M.D.
    Assistant Professor
    Department of Medicine
    University of California, San Francisco
  • Carmen A. Peralta, M.D., M.A.S.
    Associate Professor
    Department of Medicine
    University of California, San Francisco
  • Neil R. Powe, M.D., M.P.H., M.B.A.
    Constance B. Wofsy Distinguished Professor
    Vice-Chair of Medicine
    University of California San Francisco
    Chief of Medical Services
    San Francisco General Hospital
  • W. Brian Reeves, M.D.
    Professor
    Department of Medicine
    Penn State College of Medicine
  • Rajiv Saran, M.D., M.S.
    Professor
    Department of Internal Medicine, Division of Nephrology
    Associate Director
    Kidney Epidemiology and Cost Center
    University of Michigan
  • Kevin Shah, M.D., M.B.A.
    Medical Director
    Primary Care Innovation and Improvement
    Duke University Health System
  • Mark Sendak, M.D. candidate, M.P.P.
    Clinical Informatics Analyst
    Duke Institute of Health Innovation
  • Joseph Vassalotti, M.D.
    Chief Medical Officer
    National Kidney Foundation