Research Advances for Urologic Chronic Pelvic Pain Syndrome: Informing the Next Generation of Clinical Studies
Executive Summary (PDF, 265.18 KB)
Urologic Chronic Pelvic Pain Syndrome (UCPPS) encompasses both Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS) and Chronic Prostatitis/Chronic Pelvic Pain Syndrome (CP/CPPS). UCPPS is defined by the hallmark symptom of chronic pain in the pelvis, urogenital floor, and/or external genitalia often accompanied by diverse urologic symptoms, such as urgency and frequency. UCPPS is highly prevalent and its impact on patients’ quality of life is enormous. However, despite much past research broadly effective clinical management strategies are still lacking.
The Research Advances for Urologic Chronic Pelvic Pain Syndrome: Informing the Next Generation of Clinical Studies meeting will provide a forum for exchange of new insights into UCPPS underlying mechanisms and clinical characteristics. The meeting will highlight findings from the NIDDK’s Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP) Research Network and other investigators working in the UCPPS field, as well as advances in other areas that may inform the study of UCPPS. Collectively these efforts are providing a critical new evidence base to support future studies of UCPPS, including improved clinical trial designs.
Major scientific themes will include:
- Phenotypic Subgrouping Strategies for Targeted Interventions
- Mechanistic Insights in Support of New Targets and Phenotypes
- Improved Evidence-Based Definitions and Outcome Measures
- Designs for Clinical Trials Informed by New Research Insights
Breakout groups for these themes will support discussion of key considerations for potential future UCPPS clinical trials. In addition, a novel Patient Forum will be convened to solicit input from the patient perspective.
A central goal of the meeting is to promote the translation of new findings into future, evidence-based clinical trials for UCPPS that will ultimately improve patient care.
Chris Mullins, Ph.D.
Julie Barthold, M.D.
Kasey Boehmer, Ph.D., M.P.H.
Toby Chai, M.D.
J. Quentin Clemens, M.D.
Ziya Kirkali, M.D.
Robert Moldwin, M.D.
October 10, 2022
October 6, 2022
Registered participants will receive the link to join the webinar prior to the meeting via email.
Chris Mullins, Ph.D.
Meeting Logistics Contact:
The Scientific Consulting Group, Inc.