Workshop on Behavioral and Psychosocial Factors in Women with Urinary Incontinence

Event Details

Meeting Summary

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Event Details

NIDDK will convene clinical and psychosocial researchers to explore the effect of individual differences in behavioral and psychosocial (non-biologic) factors on the treatment trajectory and response in with women with urinary incontinence (UI).

Meeting Objectives

• Explore the non-biologic factors (NBF) in women with UI that affect health care decision-making along the treatment pathway (experience of and response to condition, acknowledgment of issue, seeking care, treatment selection, adherence, satisfaction with care) and how differences in NBF may affect treatment trajectory and response.
• Identify research opportunities to determine if NBF in women affect UI treatment outcomes.
• Explore how knowledge of NBF in female UI patients could be used by clinicians to optimize UI care recommendations based on the individual patient profile. 
• Identify opportunities for engaging both psychosocial

Space for this meeting is limited. If there is interest in attending this meeting as an observer, please contact Tamara Bavendam, M.D., at tamara.bavendam@nih.gov.

Agenda

Meeting Introduction

8:00 a.m.

Opening Remarks
Robert Star, M.D.

8:05 a.m.

Meeting Overview
Tamara Bavendam, M.D., M.S.

8:13 a.m.

Participant Self-introductions

Introductory Presentations

8:15 a.m.

Clinical Care of Urinary Incontinence
Leslie M. Rickey, M.D., M.P.H.

8:45 a.m.

Contribution of Non-biologic Factors to Health
Helen L Coons, Ph.D.

9:15 a.m.

A Framework for Incorporating Non-biologic Factors in Research
Marian Tanofsky-Kraff, Ph.D.

9:45 a.m.

Break

Group Discussions

10:00 a.m.

Case-based Discussion: Decisions on the Treatment Pathway

• How do individual differences in NBF impact:
  • Experience of and response to the condition?
  • Acknowledgement of UI as an issue?
  • Decision to seek care?
  • Treatment choice?
  • Treatment adherence?
  • Patient perceptions of satisfaction with care?
• Discussion: What 3 to 5 NBFs are most important for the clinician to know about a patient in order to optimize care?

12:00 p.m.

Lunch

12:30 p.m.

How do we begin to conduct research on the impact of NBF in UI?

• What barriers/challenges stand in the way of successful research? How might they be overcome?
• How do we identify what NBFs are most important/relevant to UI?
• How do we measure NBFs? What tools exist? What tools do we need?
• What can we learn from other functional disorders about the impact of NBF on the disease pathway?
• Are there any unifying themes regarding impact of NBFs?
• What are the key hypotheses?

2:00 p.m.

Break

2:15 p.m.

Planning the Next Step: What actions should NIDDK take?

• Should NIDDK consider hosting a “State of Science” Meeting
  • High level goal to prepare researchers for joining psychosocial and clinical research for UI (or broader)
  • What 2 to 4 objectives should the meeting aim to accomplish?
  • Who are the leaders in the field? Who needs to be at the table?
• Should the meeting participants develop a white paper to capture discussion and recommended next steps?
• Other ideas?

Meeting Close

3:15 p.m.

Thanks and Summary of Meeting
Jenna Norton, M.P.H.

3:30 p.m.

Adjourn